Kelli I see your getting the stallate block in a couple days.

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PostPosted: Thu Feb 07, 2008 2:03 am   Post subject:   

What do you do August? If you do not mind me asking. You seem so educated I could not imagine you not having health coverage but then again I am a graduate and do not have any sooo:(

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PostPosted: Tue Feb 12, 2008 2:31 pm   Post subject: health care  

wow August you hit the nail on the head. It is absurd how much you pay to see a doc and then feel like you are being rushed out the door. After not getting enough time or answers from my pain clinic, I scheduled an appointment with my primary care doc. They treated me after the accident first. They directly told me they could not be of any assistance to me at all on this anymore since they turned the care of me over to the pain clinic. I am definately ready to be done with all this. I didn't ask for this aggravation. It has been two weeks and I am still awaiting the results from my testing I had to travel a zillion miles to get. They said within a couple days I could call the perscribing doc and get the results. When I do they keep saying that there is nothing in the computer yet..Anyone just wanna go look around and see if they may be laying somewhere..Guess that takes too much time. Well I am done venting for now. Kelli I see your getting the stallate block in a couple days..good luck.

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PostPosted: Thu Feb 14, 2008 2:59 am   Post subject:   

Are you going to have the block fireyone? What are the next steps for you or don't you know until they get off their duppas and get you the results.

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PostPosted: Thu Feb 14, 2008 3:33 pm   Post subject:   

I have a lot of fear about those blocks or shots or what ever they are called, they are a temporary fix of the problem right? They don't take it away right? I am afraid of the side effects.

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PostPosted: Fri Feb 15, 2008 2:36 am   Post subject:   

finally got those results from Pitt, after many calls. It is RSD already progressed to late stage 2. If I don't get these blocks and it reaches stage 3 I may lose alot of more use of my arm, so therefore I haven't got much choice. It is short term but the more you get the shots the longer the effects. I have been on the net for two days straight researching RSD and quite frankly it scares me cause I can already see the onset of stage 3 setting in. Once you let it go too long not too much can help control the symptoms. a good web page for anyone dealing with this and or dealing with people who seem to think it is all in your head need to check out RSDHOPE.ORG. So now I'm left to deal with the demon but life has taught me quite a bit this past year and I'm tougher than I relized. I'm going after it with a passion and not giving up. Even though it is uncurable there are things that can be done to tolerate it. Hopefully I still have this outlook a year from now when it will probaly be worse but for now its day by day. Well gonna go gather more info, make a question sheet and pray the pain clinic can fit me in before Feb. 27 when my first block takes place. Talk to ya soon

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PostPosted: Sat Feb 16, 2008 6:00 am   Post subject:   

goodluck with this demon fireyone, I really hope that you have this outlook too, always good to stay optomistic in a long term treatment program, you can always come here for encouragement. we will try to help you through it.

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PostPosted: Sun Feb 17, 2008 4:13 am   Post subject:   

Yes I must say this is a pretty good site. Keeping my hopes up. I relize dealing with long term treatment may become stressful but I'll manage. Got a pretty good support team here at home also. That really helps.

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PostPosted: Tue Feb 19, 2008 4:58 pm   Post subject: RSD  

Hi Everyone, Well I had the stellate ganglion block on feb 14th and let me say it was not painful, I actually do not remember a thing, I just remember getting off the table thats it! and I felt so damn good with no pain, I actually kept saying over and over again that I feel so good! first time in 17 months I have been pain free, but it was bitter swet as it only lasted for 5 hours and the test for me was basically for diagnostic testing and as well as pain relief. When I came home I actually ate a whole tv dinner something I usually cant do, I am usually under 600 calories a day as the pain is so intense, I usually just take a bite here and there and this felt so good to eat. Fireyone it was easy and painless dont be scared, side effects are red and droopy eye on side of injection stuffynose like you have a cold headache and a lump in your throat that is so wierd but it goes away. I am glad you are having it done good luck it will be ok. I will now be realy busy with all my dr appointments and treatment plan and will check in with you later. Bye everone and have a good week.



keli

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PostPosted: Tue Feb 19, 2008 6:32 pm   Post subject:   

It only lasted for 5 hours? So do you keep going back for the blocks or what, does not seem worth it if there is not something that can last longer, I was picturing about 6 months of so anyway. Was this just a test, will they give you something that will last longer?



I wish you luck in your recovery, hope it all works out for you soon. Hope they get you more relief then 5 hours. goodluck.

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PostPosted: Tue Feb 19, 2008 6:49 pm   Post subject: stellate ganglion block  







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PostPosted: Tue Feb 19, 2008 6:56 pm   Post subject:   



So in the first article i pasted it states one may need 2- 10 depending on pain relief, my first one was to actually see if it is my sympethic nervous system was involved and to document along with my other sx,s= tremors,extreme nail growth and very groved nails color changes, rashes, and extreme coldness on my right hand as well as causalgia and allodina, that this is truly RSD though i only had 5 hours of relief it did prove this to be RSD now will be talking to neuro and anestheisiologist on a treatment plan



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PostPosted: Tue Feb 19, 2008 7:03 pm   Post subject: RSd  

Oh by the way I have done many searches on rsd just changing how i word it in my search and I have found many many sites that are so worth reading and understanding this, It does make me very sad and angry to think I probally will never have the same feeling in my rt arm as i do in my left and the pain I must endure evry moment, I even wake up several times in the night with pain and I must take a pain pill and the depression gets to be really bad my dr just added one more pill to my many others, seroquil as I feel so depressed and do not feel I have a quality of life now or in my future, I am trying so hard not to be angry my primary dr told me to just look foward and she is so understanding and compassionate to me I love her so much, It was hard at firt to go see her as I work in an urgent care with her and I ws so embarressed by the way I was feeling but so glad I took the stp to see her. Thank you for your kind words this place has really helped me stay stable also just talking about it helps.

thank you



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PostPosted: Wed Feb 20, 2008 3:44 pm   Post subject:   

I wouldn't even think about driving until I knew how it affected me. Actually you aren't even allowed to get the treatment if there isn't someone there to drive you home. It is scary and I continue to dread it as the days come closer but I have did some research and talked with the doc and they assure me that it is very simple procedure and that the side effects are short lived ( a few hours). Any life threatening ones are slim to none with only a 3% having an adverse reaction. Most surgeries carry a higher rate so that has calmed my nerves a bit. I'm scheduled for three so I'm going to chance the first and see if it helps. What really disgusts me is that there is a simpler answer and one that has a higher success rate for people with RSD. It is a TENS unit which is a alot of detail to explain but is actually more recommended. The insurance company will not pay for this until I do the blocks (Yes all three of them). It is definately less invasive but I guess even though it is my body I really don't have the say so in all choices.

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PostPosted: Wed Feb 20, 2008 3:59 pm   Post subject:   

I am so sorry for your mishap and your health woes since. 600 calories a day may cause even more issues for you down the road. Eating healthy and getting enough calories is very important to your everyday functioning, especially your energy. Meal replacement drinks are always a viable option, one which you should consider.



Quote:
Will the stellate ganglion block hurt?



The stellate ganglion block involves inserting a needle through skin and deeper tissues. So, there is some pain involved. However, we may numb the skin and deeper tissues with a local anesthetic using a very thin needle before inserting the actual block needle. Most of the patients also receive intravenous sedation, which can make the procedure easier to tolerate.





Well your tougher than me if you say there is no pain. The thought of a big needle makes me shriek. Good luck to you!
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PostPosted: Wed Feb 20, 2008 4:09 pm   Post subject:   

I have been told there id pain involved. They do use a local anethetic but they do not sedate. I have a fear of needles to begin with. Living with everyday pain is worse than 20 minutes of it. At least that is how long the procedure is suppose to take. It just takes a few of them to keep on working.

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