I don't know much on the brachial plexus injury.

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PostPosted: Sat Mar 01, 2008 12:28 am   Post subject: car accident  

Oh thats too bad but also good your dr is safe and not just trying to pocket monies! glad you are feeling better about the injections. I just came back from f/u visit with pain dr and I told him I had 5 hours of relief after the injections he stated he was not happy with that and it probally was the sedation med, Im confused as everythig i have read on the internet states that one should keep track within the next 4-6 hours after the block to see what your pain level is and that mine also was used as a diagnosis tool so i did have relief but not what the dr expected! I am really sad and frustrated to my point break, hes really not sure if it is rsd and now i have to go for a cvervical nerve root block which is done under anestheisa and he said its a more complicated procedure, scares me as he had said this before but he wanted to try the stellate ganglion block first, he also like i said before i could have a brachial plexus injury, I was on the verge of crying as i havent had a diagnosis for 17 months and after reading about the stellate ganglion block and what you should watch for i thought hey thats what i have but he said for me not to worry that we havent exhausted all are options, ie diagnosis proceduresand he gave me a cd to watch, it is for neurostimulation therapy, Im not sure what it is about and I am not in the mood to watch it today, I am so mad as my last pain clinic just gave me pain meds and nothing else, new pain dr is more aggressive but i have only until june 11 to keep my position at work, I told him this and he perscribed me methadone, as the duragesic patch was too strong for me I almost crashed my car at least 10 times! I am so frustrated as i am not suer now what my diagnosis is though he states rsd or brachial plexus injury, i just need to know so i can start the appropiate treatment asap and return to work, its so damn hard taking all these meds and now i have yet another! I have until oct 08 to settle my claim but that is such the futherest from my mind now I just want to feel normal again. I will let you know what the cd is about and get back to you all soon. Since I feel so openly able to express myself to you all thought id let you know where i live and hope to hear back from you all, its so nice to know you are not alone no matter what injury or pain each one of us has and too know its everywher. I live in vacaville calif about 55 miles from san Francisco which is where i just moved from. Take care I think about you all!



Keli

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PostPosted: Sat Mar 01, 2008 2:15 am   Post subject:   

Wow I am so very sorry for what you are going through. You really do seem to be depressed, I am trying to be honest here. Have you talked with anyone? I think all these doctors are nuts and I want you to stand up and tell them you aren't taking it anymore. THERE IS A DEFINATE TEST FOR RSD!!! Please demand it. It is called QSART. Please this will tell you at very close to 100% if it is RSD. Once they rule that out then they can move on with another pronosis. You can not ever be happy taking all thmedication that you are and it probaly isn't doing your mind or body good either. 17 months is too long to bet answers.



I had refuse most medication and treatment until after testing. I refused to be treated for something "just in case". I let them know this. I really believe some doctors out there hear the word car insurance and sometimes start playing around. This simple tests could give you the answers that you need. I know I sound like I am begging here but I guess in a way I am. Think about it. Even after they get a definate diagnosis and hopefully fix what is broken so to speak, you still have to deal with getting all those meds out of your system that has been fed to you for over a year. I imagine some will be hard to get off of.

I don't know much on the brachial plexus injury. You need to research it. I hate to see them put you thru more of these uncomfortable tests and treatments for no reason. I'll let ya go but keep in touch. God Bless and Good LUck.

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PostPosted: Tue Mar 04, 2008 3:19 am   Post subject: car accident  

Hi fireyone, Yes! i am going to ask the dr about the QSART test i have too. oh the cd was about implanting a device to stimulate the nerves, i feel like a ginny pig but I have to get better before june 11 when I have to return to work or i will lose my position, though nothing has changed in my pain situation i cant see going back with no relief not sure what i can do. yes I have to talk to a specialist about this hopefully that will help me. oh does that qsart test hurt?i will have to look it up. good luck on your procedure.



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PostPosted: Tue Mar 04, 2008 11:01 am   Post subject:   

Good desicion Kelli. The QSART test is as far from painless than you can imagine. When I went to have it I was sooo nervous. I thought that since they were messing with my bad arm there would have to be some pain in it but I was wrong. Its pretty hard to explain the test and how it works but go ahead look it up and you will get lots of info.

I think what the other thing is your referring to is like a TENS unit. I know someone who got this implant system and have hope he swears its the first real relief he has had. He was in a mining accident and was really messed up. That is the next step they will do for me if the shots don't work. I know you probaly do indeed feel like a ginny pig because I felt the same way. What I have come to understand is that everything is a process. They have to try things in a numbered order. For example...Even though the TENS unit gets the best result before the insurance company approves it you must have tried the ganglion block. Its not exactly fair is it?

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PostPosted: Tue Mar 04, 2008 11:37 am   Post subject:   

Was he able to go back to work after the accident in the mine by using this device?

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PostPosted: Tue Mar 04, 2008 11:42 am   Post subject:   

He wasn't allowed to go back underground but he was released to light duty. He refused a desk job. He was pretty messed up afterwards with screws in his back and all but he swears this unit helped him. Seeing him today he doesn't seem to be in much pain. I think he is actually suing the mine and not going to return there. He did try once after the accident but it caused one of the screws to break and now his doctor forbids him to go back underground...well off to the school bus with one kid and then off to pick up the other one's laundry..Ahhh....motherhood.

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PostPosted: Sun Mar 16, 2008 5:12 pm   Post subject: car accident  

Hi fireyone, Did you have the block yet? I also want to ask you do you see a neurologist? my primary care dr said my neuro will be the most important person to help with this rsd, so i went to see her for the second time and she was like im so sorry but i just know the basics of rsd we neuro drs dont treat rsd and that my anesthesiologist is the dr whom will help and follow me the most, The neuro dr is very nice and compassionate but this is not their field? im confused. So now im waiting on cervical root block and then the dr mentioned a neurostimulator, which is darn scary, I told him i have only until june 11 before my six months are up for leave of absence and how can i go back to work when nothing has changed, he said we havent lost all options and gave me an rx for methadone. I cant take all these meds its awful as you know, I even sorta wrote to my lawyer stating " I dont know what to do" I have to work to pay bills, I have a desk job doing referrals for an urgent care but even doing a desk job doesnt allievate the pain situation any different you know the pain is there 24/7 I am such a nervous wreck, I have to either have a pain pump or neurostimulator inplanted to get me back to work even though i dont want such an invasive procedure or a foriegn object inplanted in me but obviously i have no choice, I wish someone had an answer on what I can do its really scary. Sorry enough of me, Let me know if you had the procedure and if it helped cant wait to hear..



best of luck always



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PostPosted: Sun Mar 16, 2008 5:14 pm   Post subject:   

oh by the way i brought up the qsart to my neuro dr and she didnt know who adminsters it and if my ins would cover it and did state mabey i should go to a specific hospital and try and find a dr who specializes in rsd.

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PostPosted: Mon Mar 17, 2008 2:54 pm   Post subject:   

Qsart is done in your higher ranking cities but I am imagine any state would have at least a few hospitols that would be able to do it. It has been around for roughly 10 or more years. My insurance must have covered it cause I haven't recieved any bills from blue cross. I was not sedated at all for the shot. They only gave me a regional pain eliever where they inserted the bigger needle. I felt some..not much relief. I had extremely bad headaches for two days after. I went for my post check up and got a totally different doc. Now he wants to do trigger-point injections instead to see if they work better. He says that will relieve me of the shots but in the end I may have to get them again. The trigger point treats the exact site of the injury. I am NOT happy about anyone even touching that area of my arm. I would rather have continued with the neck even with the pain and two days of blurry vision and headaches that went with it.

Yes I have seen a nuerologist. They did tests also. It took the qsart test to confirm RSD. I finally seen the results on that one and the doc who read the test listed definate RSD. I hope they find something soon that helps you. It seems your road has been long. I made my doc take me off the lyrica...side effects were awful when I took it. I couldn't do anything but lay around and sometimes sleep away my day. Half the time you can't even think. I quit taking it during the day long ago and only took it at night. They put me on flector patches (nsaids) because I told him I would rather walk around in pain than lay on my couch watching life pass me by. Keep me posted and hope all goes well. Praying for you.

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PostPosted: Thu May 15, 2008 2:48 pm   Post subject: car accident  

Hi fireyone,

How are things going for you? ? How are you, I havent been on this forum in such a long time,oh i see you had the block. sorry it didnt work, mine helped for 6 hours, also had headaches and blurry blood shot eyes for two days but the relief i had for 6 hours was worth it.I was given versed and demeral and didnt feel a thing.I had the cervical selected nerve root block on april 18th and it hurt like hell! did not work, i actually was in bed for 8 days didnt eat and lost another 12 pounds, after two days i called dr office and left a message that i had a fever and nausea and bad pain, they never called back, so i caled again the next day and left another message and then i had my son fax a message over again they never called, my neice was going to take me to the er and i said no so i called the surgery center where i had the procedure and they got ahold of the dr and he apologized on what happened, He said to go to er if i was feeling that bad but i didnt he said then come see him next day which i did, he did blood test, said i had a fever and put me on cephalexion, i did not have a bacterial inf so i stopped the med as it was viral, which i most likely picked up from the hospital, i later found out by the ma that the staff got a good lecture about what happened, my pain dr wants shoulder scoped due to the fact so many labral tears do not show up on arthrogram mri, so hopefully in two weeks i will have it done, I know the risks involved when one has rsd, but its the last of test to really indicate rsd. I took your advice and am now seeing a psych and i actually sometimes feel better, i also found out my job is holding my position for 3 more months, in june i would have lost my position but the medical director stated my longeviety and good work and she can hold it for 3 more months so thats a huge cow lifted off my shoulder! I am now taking valium which helps alot, oh i also have the flector patches and i like them alot it seems to help some, yea i quit the lyrica also way to dizzy!!!!!

what is your next step? I think about you all the time ill hang in there if you do the same! take care and please keep me updated on yourself.



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PostPosted: Mon May 19, 2008 11:47 pm   Post subject:   

Long time Kel. I am doing trigger point injection in the arm and elbow. the ones they did in my arm help more than anything. For some reason they thought if they would do one in the elbow it would last longer. It didn't. I don't feel like calling them and saying this. I just want to be left alone for a little while. I am sure ya know what I mean there. My rsd has casued tendinitis so its already getting worse. My mood hasn't been the greatest.

I had a doc appoint. last Friday and she wants me to see a pycologist. She seem to think I have control and anger issues since the accident. Now I have been going to that office for twelve years and I don't doubt her diagnosis in anyway but what does anyone expect. Am I suppose to walking aroung singing "I love my Life?" Whatever. Of course I am angry. Who wouldn't be?

I see things are going along the same route with you. I cann ot believe not much has changed. I am sure ya probaly got some anger issues of your own..if not you have alot of courage. Well gonna go. Keep checking in. I usually buzz by here now and again. Depends if my hand is up to typing. Take care.

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PostPosted: Tue May 20, 2008 3:37 am   Post subject:   

Hi Fireyone, so so sorry on how things are with you, I feel exactly the same way! and I know what you are going through and it sucks ( sorry had to say that) yes i noticed the longer it kept going the worse my moods are, you actually pointed that out to me, and thats why i finally went and got a therapist, i did not want to go through the insurance bit and all as its so emotional and it took me almost three weeks to find one and by that time i was really pissed, our emotions,stability and all the tension we are having makes us so angry! we cant help it. I like talking to the therapist but at the same time im thinking oh i feel bad telling her my problems when she must have her own its my ocd. Yes i can relate on you wanting to chill for a bit we are just angry and we cant help it, but ill tell you go find a therapist it helps.You take care and just relax and ill write you back again soon, i dont know how i will feel after my surgery but i pray they find a tear and that i dont have rsd thats my greatest fear at this point and time i am trying to accept the worst but hope for the best. ill be thinking about you!



love

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PostPosted: Wed May 21, 2008 10:15 am   Post subject:   

Kel...I hope when they do the shoulder scope they get some kinda concrete diagnosis to go on. I truly hope you do not have the RSD either. There are days I just feel like quiting. My arm locks up and cramps sooo much. I am not a person who lets things get her down and always tries to find the bright spot. I just can't seem to do it this time. I am seriously thinking of a phycologist.

What great news that your job is being held for you, even if it isn't a long time but hopefully by then someone will know what is going on and find a good course of treatment. I know its probaly hard to get your hopes up. I find myself gaurding my feelings alot. I recently just got fed up hoping something works and said to myself "Expect the worse and pray for the best". I am gonna wait a little longer and request going back to do the trigger directly into the arm and NOT the elbow. Keep me updated. I also think of you all the time. I imagine it has to be hard going this long especially with no answers an d no results. Good luck.

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PostPosted: Fri Jun 13, 2008 8:48 am   Post subject: car acident/rsd  

Hi fireyone, well the scope was done, ortho did not want to do it if i had rsd but he was the only dr out of four others whom thought i did not have rsd. so he decided to do it. so the surgeon wrote down findings to give to my brother as i would not have remembered. Findings= no labral tear mild instability small area of abrasion and partial thickness tearing of rotator cuff, the ortho dr just sent me the report and it states post op diagnosis= rt shoulder pain and impingement with partial thickness bursal-sided tear of rotator cuff , procedure rt shoulder arthroscopy with subacromial decompression. under his indications in the report it states about options discussed, it was discussed at length that she had many symptoms that could not be directly attributed to subacromial or glenohumeral process and that it was not expected to relieve all of her symptoms, it was discussed that a diagnosis for her might not be adequately idenitifed and that she could have persistence or even worsening of symptoms. Possibility of regional pain syndrome given her initial characterization of her pain and her need for ongoing pain management was discussed at risk.So basically i still could be diagnosed with rsd, though some symptoms have been allieviated my arm is still killing me, i actually fell against my sliding glass patio doors 34 days after surgery then two days later i tripped over a bucket and mop outside a facility and fell on my shoulder then that night i fell off friends couch after nightmare of accident and friend had to help me up, i called ortho monday 3 days later and told receptiionist what had happened and if i should see him sooner as i am gettinng electrical shocks from my shoulder to my four fingers then my hand cramps up and fingers turn blue, but he said i could wait till my next appt at the end of june, thank god i see pain dr tomorrow because i could have torn cuff again, my pain dr has actually put me off work until 12/08 so bad to good to bad to good to bad so it wasnt in my head after all but scared i still might have the rsd, i dont know how long i should feel this pain so i will get answers hopefully tomorrow, I still cant believe i had this damage and had a neg mri and waited 18 months! I have to now see a psychciatrist as my meds are making me very unstable, whom i see now is a family counselor and she suggested i see psych as well. so its just so unbelievable, i was happy he found something but sad after getting or report of still poss of rsd. how are you doing? hang in there!



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PostPosted: Fri Jun 13, 2008 10:25 pm   Post subject:   

Hi again, well i just came back frompain management dr and very sad as he said the torn rotator cuff and impingment injury is not all i have , he said i have brachialplexsopathy, poss nerve damage and poss rsd, so i am now shattered as can be he also wants to get a neck mri and have me go for a consult for a neurostimulator transplant in my spine, damn i thought this was it and now its not, how much dissapointment can one take! hes weaning me off the diazepam and giving me ativan and somthing else, i cant remember, i stopped my cymbalta and my seraquil as it made me so unstable thats why i have fallen per my counselor, so again like you my hopes are dashed, but let me tell you something that just happened, my son is bi-polar and manic depressive and on my moms 12th year death anniverssary we got a letter from a lawyer for probate of will for a deceased person it turns out to be my sons dads stepfather died and i called the lawyer and he said that the deceased has left my son a trust fund, i know it was from his dads mother as she said when he was born that she was setting up a trust fund for him, i found out she had died in2004 so she probally sent everything to her ex, hey i dont even know if they were divorced, i never met him before when i dated my sons father, and actually my sons fater said his dad died when he was a baby but on geneology i found someone looking for my sons dad and it turns out that this one guy came out from louisianna and met my sons dads mom married her and was still married to his other wife, i have discussed all this with my sons stepbrother and we decided not to tell him anything yet, but i am so happy that my son gets to meet his dad after 27 years, my son does not even have a pic of him and i think it will fill a void that my son has had all his life and i told him its up to him and his father if they wish to stay in contat and start a relationship, just overwhelmed that this was done for my son and that he now will be able to put a face to a name. so i am going to try and be more positive about this whole thing andwell last weekend my neice took me camping in tahoe but i forgot my norco bottle but had 10 in my mon-sun pill box and i was up every three hours in my car had to triple my methadone and take two tizanadine and a diazepam just to help with the pain but i got out and i will try again to go out, I actually have a date tomorrow which i cant go to cause my shoulder is worse, but you to need to just try and walk, i know that is so damn hard also its eaiser to lay in bed, but if im trying i want you to try for me and we can get through this together, you have been such a great person and you show so much empathy towards others and i am the same way thats why i am in the medical field and sad that i probally will not go back as i like to help others before i help myself. take care hope to hear from you soon and please try and get out sometimes.



love



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pain free Hug



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